A systematic observation of cancer development, put down in epidemiological cancer registries, has a long tradition. Among other things, these registries deal with the description of disease- and mortality-rates in temporal and regional analyses. Their functions include providing data for scheduling, supporting prevention programmes and informing the public.
Documentation of Diseases
Apart from epidemiological cancer registries, there are also clinical ones, the purpose of which it is to improve tumor treatment. In addition to epidemiological data, they also comprise an as complete capture as possible of individual aetiopathologies and therapies. It lies within our responsibility to acquire and select all necessary data concerning disease and therapy, as well as structuring it. We organize the communication of all persons involved and take care so that the patients’ right to informational self-determination, the protection of data privacy and patient/physician confidentiality remain guaranteed.
Guaranteeing Quality and Continuity
The very basis of professional data recording in clinical cancer registries is an adequate and comparable description of disease development in accordance with national and international standards, which needs to be adapted to medical progress and simultaneously has to allow for comparability with others and over the course of time. In accordance with these standards, we plan, develop and maintain databases and support their users. Furthermore, regular statistical data analyses and evaluations also belong to our tasks. We discuss these together with the treating physicians and assist with their interpretation, if necessary. Through our continuous efforts, we ensure a high level of data quality and thus provide a basis for constructive evaluations of the information documented in clinical studies and in the cancer registries.